It's been awhile since a trip to Cincinnati felt so heavy. Last week, we posted our crazy previous 2 weeks and our plan moving forward. Then, over this past week, we continued to search for peace in that decision. Ultimately,...
It's been awhile since a trip to Cincinnati felt so heavy.
Last week, we posted our crazy previous 2 weeks and our plan moving forward. Then, over this past week, we continued to search for peace in that decision. Ultimately, we decided we needed to have more review of Tillery's chart. We are having her records sent for review by St. Jude and Dana Farber. Today's MRI will tell us if there has been growth over the past 7 weeks and how much growth. This will let us know if we can wait for those reviews before we start treatment or if we need to start chemo this week. We should receive the radiology report tomorrow.
Last night, Tillery and I laid down in bed and she said "Mom, sometimes I say a prayer by myself in my bed." She wanted to say a prayer for us and asked "Do you have any prayer requests, Mom?"
Mom: Let's pray for your MRI tomorrow.
Tillery: Yeah, but why do I have to have an MRI?
Mom: Remember how we saw that your brain tumor has grown a little bit? We are having a new MRI to measure again so we can pick the best medicine for you.
Tillery: Will it be yucky medicine?
Mom: I don't really know. It might be a pill that you swallow or medicine that you drink. Or it might be a medicine we have to go to the hospital to take.
Tillery: I hope it's not yucky. I love you, Mom.
Mom (through tears): Mommy and Daddy love you so much Tillery and we will do all that we can to always do the very best for you.
Tillery: I know but why do you say it sad.
Mom: I'm sad that you have to take any medicine at all. I just want you to always be good.
Tillery: It's okay, Mom. If you feel sad or scared you can always come to me and I will give you a hug.
Mom: And if you feel sad or scared you can come to me and I'll give you a hug.
Tillery: Deal!
This kid is amazing!
