Toby lives with childhood dementia. Limited funding in Australia is leaving families without hope

The Guardian · 2 years ago · 131 views

Death rates from childhood cancer have almost halved but there has been no improvement in survival rates for children with dementia Follow our Australia news live blog for latest updates Get our breaking news email, free app or daily news podcast For Nicole the hardest part of her son Toby’s childhood dementia is its regressive nature. “Having a child, watching them grow, watching them achieve and then watching that slowly be unpicked until there’s nothing left,” she says. “To me, that is what makes it different, watching someone stage by stage die, parts of them dying. It’s a very slow and very cruel disease.” Sign up for Guardian Australia’s breaking news email Continue reading...